We were interested to read about the long-term cumulative effect of ataluren treatment on FVC in DMD patients

A recent study by Michael et al. (2021) explores the long-term effects of ataluren on patients’ upper motor and respiratory function. Long-term cumulative treatment outcomes over a median period of 6.3 years on ataluren treatment indicated a delay in the loss of ambulation, a slower decline in forced vital capacity (FVC) and upper limb motor function even after loss of ambulation.

The Vitalograph Alpha was used to measure forced vital capacity in this study.

Read the full report: https://doi.org/10.1186/s12891-021-04700-z  

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Aurika Savickaite is passionate about non-invasive ventilation (NIV) via helmet, and she has now set up a website www.helmetbasedventilation.com to share her expertise and knowledge with others. Having been involved in the successful testing of helmet ventilation at the University of Chicago, Aurika has invaluable insight to share.